Join the Discord
The server is open to everyone. It has organized channels for discussion and hosts monthly meetings where members can talk through shared challenges and solutions.
You are not the only one.
Many of us had never met another person with RUS in person. The community started online so people could compare notes, share adaptations, and feel less alone.
Join Discord (opens in a new tab)
Ask us directly
Questions, comments, ideas, and introductions are welcome. Email the RUS in Focus team and a real person from the community will read your message.
Contribute or share your story
RUS in Focus is community-built. You can contribute a patient story, medical perspective, technical help, artwork, research, or another skill that supports awareness and connection.
The team first met through social media and found a shared goal: make RUS easier to understand, easier to talk about, and less isolating to live with.