RUS in Focus began when people who met through Reddit brought together patient experience, advocacy, art, and the same belief that information should be easier to find.
Isabella is from South Korea and studies in the United States. She was born with CRUS and works as a Young Adult Rare Representative with the EveryLife Foundation, advocating for rare-disease legislation and for information and community to be easier to find.
Sarah is a rare-disease advocate focused on raising awareness of radioulnar synostosis, a condition she has herself. From Yardley, Pennsylvania, she shares her experience through social media and community work to help people with RUS and their families feel seen and connected.
Katja, also known as katjapetersart, is a Dutch social-work student and visual artist born in 2002. She has post-traumatic unilateral RUS and has had four surgeries on her right elbow. She contributes long-term treatment and chronic-pain experience; a salvage operation restored much of her movement and reduced her pain.
